When you discover a charity that is in need of supporting you tend to want to help in any way you can and as featured in Country Child’s Winter issue, Breathtakers OB Trust is a charity that is only six years in the making and supports children with a rare and life limiting lung disease, Obliterative Bronchiolitis (OB). Having recently attended their Charity Christmas fundraising lunch we learnt more about the rare disease.
Many children with OB are misdiagnosed with chronic or difficult asthma and some children wait as long as ten years for a correct diagnosis which impacts on long term prognosis and quality of life.
Children with OB have vastly reduced lung capacity and suffer from breathlessness, repeated chest infections and exercise intolerance. They often have associated conditions such as bronchiectasis and gastric reflux. Some children are oxygen dependent and can eventually require a lung transplant before the age of twenty. They spend lots of time in hospital and often miss school so life can be a challenge.
Breathtakers OB Trust is based in Andover, Hampshire and was founded by a local Mum whose daughter has this debilitating disease. They are the only UK charity specifically supporting these children and their families, their mission being to ‘Simply make life better for children with OB’. They try to do that in a variety of ways from practical and emotional support, providing medical equipment, hospital gift boxes, sending families on wish days and respite breaks. They also work hard to raise awareness with medical professionals to encourage early and correct diagnosis along with supporting and promoting research into this devastating and irreversible disease.
The Christmas lunch at Basepoint Andover (huge supporter and sponsor of Breathtakers) was inundated with donations and stalls donating raffle prizes as well as carol singers to add that festive feeling. A total of £169 was raised which Basepoint will fund match and Rachel Titchener, spokesperson for Breathtakers would like to thank you to all who attended.
To enable Breathtakers to carry out more objectives of course they need more support. If you would like to know more about the charity or even believe your child may have OB symptoms please contact the team at: www.breathtakers.org.uk or email: email@example.com or Telephone: 07546 560803.